A PARTICIPATORY RESEARCH NETWORK
Families as true partners in scientific projects
Families and autism patient associations play a crucial role as partners in our scientific projects.
Their lived experience, insight, and commitment serve as sources of inspiration and guidance, helping us design more relevant research and develop solutions that truly meet the needs of individuals affected by neurodevelopmental disorders.
Their active involvement strengthens the inclusive nature of our work and helps make research a positive force for improving the daily lives of these individuals and their families.
of Excellence are :
- Encourage close collaboration between researchers and affected individuals
- Promote innovative approaches by actively involving people in the design and conduct of studies
- Ensure that research addresses the real needs of the communities involve
- Provide training to enhance the skills of researchers and participants
- Share research results in an accessible manner
Survey on Participatory Research in the Field of Autism and NDDs
To assess the state of participatory research in the field of autism and neurodevelopmental disorders, CeAND conducted a survey among its members to collect the perspectives of researchers as well as families and user representatives.
The objective of this survey was to identify the knowledge levels of various communities regarding participatory research and to highlight the main barriers and opportunities.
The results of this survey were presented at a webinar in October 2021 as part of the Fête de la Science, featuring Professor François HOULLIER, author of the report “Participatory Sciences in France: State of Play, Best Practices, and Recommendations” published in 2016.
Webinaire - CeAND
Participatory Research in the Field of Autism and Neurodevelopmental Disorders
